Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
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This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..
Guest |
#32016-11-11 22:12I also have a 4 yr old little girl with CF (Jessica) even tho she doesn't benefit from this drug ( because she has two different types of mutations) I know the struggle and the heartache ever parent goes through , and everychild deserves a chance at life and to enjoy life without suffering . |
Guest |
#52016-11-11 23:22Because every child with cystic fibrosis should be entitled to this drug |
Guest |
#102016-11-12 08:50I signed this petition because I have a family member who need some this medication. |
Guest |
#122016-11-12 09:40It should not be a question of money or age group (under 5) when a drug is available that can reduce suffering. |
Guest |
#132016-11-12 10:04No one should be denied the right to a better quality of life in this day and age. Why suffer needlessly x |
Guest |
#142016-11-12 10:51I signed for Chloe <3 and all the other little troopers that need and deserve this drug! |
Guest |
#162016-11-12 15:05I want this drug approved for my 3 year old niece with CF. This drug would knock out one of the particular genes she carries and change her life. |
Guest |
#182016-11-12 21:39I have signed as I believe these children should rightfully be given this drug no matter their age. This is discrimination which should be outlawed! |
Guest |
#192016-11-12 23:02Very important that this message gets back to the Irish government to help parents with children with this disease |
Guest |
#212016-11-13 11:06 I myself have COD , my Niece has CF .The West of Ireland has high level of Asthrma, Bronchial and CF conditions and it also takes up an enormous amount of. Bed Days in our few remaining hospitals , all with reduced capacity. It only makes Common and Financial Sense in the long run . Bet if any Minister had a child with CF it would get passed quickly- only then would understand, the worry of having a child with CF and lack of special facilities and good Medication for their CF child. |
Guest |
#232016-11-13 18:32My granddaughter Isabelle has cystic fibrosis and her parents are trying to access this drug |
Guest |
#24 Re:2016-11-13 19:00in the 2-5 yr olds category? Does isabelles mum and dad know about our group? |
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